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Type I and progressive hearing loss

heidgerken Message
2 Jun 2009, 05:49 AM

My son was diagnosed with hearing loss associated with Type I WS shortly after birth. Now at 8 months of age it appears his hearing loss may be progressing, which is not typical. Anyone else have experience with this?
mishel1bell Message
19 Aug 2009, 05:23 AM

yes, I have progressive profound deafness. The doctors did biopsies of my intestines, He believes with the aganglionosis I have type IV.
heidgerken Message
21 Aug 2009, 05:36 AM

Thanks for the response. After more evaluations, it appears we had one bad audiological evaluation. Switching audiologists made all the difference! For now, at least, the Type I diagnosis remains.