Hi. I hope by starting someone else will join in. I found dercum's syndrome one night while surfing the web, and it explains so much of what I have been experiencing. For years, I have had a very painful lump under the front of my rib cage. I have had doctors tell me it is a lipoma, but that they don't hurt. I recently had problems with my knee. The surgeon did arthroscopic because she said my Hoffa fat pad was very swollen. There was some strange tissue in the middle, that they said is PVNS (another rare illness), but now I wonder. I brought all the information on dercums to my doctor today, and he is looking it over. I also have fibromyalgia, chronic fatigue, irritable bowel syndrome, and very painful lumps in my rib cage area, hand, knees, and upper thighs (almost by my waist). So, not sure what all this means, or if there is anything that can be done even if I get the diagnosis. I am interested in hearing any one else's story about your experience with it.