There is already an existing support community for people with VHL at http://vhl.inspire.com We invite you to join the conversation there, where there are years of previous conversations, and nearly a thousand people to welcome you. At http://vhl.org you will find 16 years of compiled information on VHL. We publish the latest findings in our newsletter (3-4 times a year), with updates between paper issues in our e-news electronic newsletter. Please JOIN - become a member, help to support our existing projects, and fund research as well. You are always welcome to phone us at 1-800-767-4VHL (800-767-4845) which is a toll-free hotline available from US, Canada, and Mexico. Write to us at info@vhl.org VHL Family Alliance 2001 Beacon Street, Suite 208 Boston, MA 02135