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Talking about VHL

vhlfa Message
19 May 2009, 06:29 PM

There is already an existing support community for people with VHL at We invite you to join the conversation there, where there are years of previous conversations, and nearly a thousand people to welcome you. At you will find 16 years of compiled information on VHL. We publish the latest findings in our newsletter (3-4 times a year), with updates between paper issues in our e-news electronic newsletter. Please JOIN - become a member, help to support our existing projects, and fund research as well. You are always welcome to phone us at 1-800-767-4VHL (800-767-4845) which is a toll-free hotline available from US, Canada, and Mexico. Write to us at VHL Family Alliance 2001 Beacon Street, Suite 208 Boston, MA 02135