Hello, friend, Off2cthwzrd! My name is Briana, and Mee Maw is actually my mom. My son is Bradley, and he has pachygyria. He is now eight years old, and potty-training was a nightmare. And we still have our moments. Now Bradley has apraxia of speech, and was diagnosed with and is treated for epilepsy, but he's a very "normal" kid when it comes to activities. He LOOOOVES and lives for sports! He gets his wants and needs across, although sometimes it's hard to understand, and he can now ride bike on his own without training wheels. And to think he just learned to PEDAL a bike this summer... (most kids learn the concept of pedaling by about what? Two?) So I was amazed. He's in the Life Skills classroom at his school, but he is in regular education classes with his specials, such as art, gym, music, library, and homeroom. He's doing GREAT in school. He takes care of himself for the most part, when it comes to getting dressed, and he can get his coat and backpack on by himself, and he has a great memory. He even knows almost all of the NFL football teams by their logo. So he's pretty average in some areas. But I wanted to let you know about the potty training. Although he can do many things other kids can, HE WAS NOT COMPLETELY POTTY TRAINED UNTIL HE WAS FOUR AND A HALF YEARS OLD. Actually, almost five years old. And to this day I still have to help him wipe. But hey, I'm not going to complain about it much because it's so much nicer than having to change a diaper or pull up. Bradley still has accidents on occasion, and yes, it's a pain in the patootie, but at the same time, he has developed the concept of shame and embarrassment, which I don't think he grasped until he was five or so. Yes, his father and I used some rewards for him, and we put him in time-outs when he had an accident. Now the time-outs didn't start until after he showed some signs that he knew he had to go, for example, he would go in the potty by himself, and later not go to the bathroom. So we knew that because he was ABLE to feel he had to go, rewards just wasn't enough. And yes, I had him in the bathroom every half hour to an hour, depending on if he actually went the previous time we went into the bathroom or not. It's very difficult, but she will make it. She might still not be ready to though. There is another little boy in Bradley's school who is in first grade now, and is six years old and has pachygyria, and he still wears a pull up. He only knows when he has to pee. Apparently, in talking to his mom, his pachygyria is also diagnosed as having lissencephaly. Bradley wasn't diagnosed with this, and he would need further testing to prove or disprove it. I truly think it all depends on the severity of the condition, or the grade. I know a decent amount about the condition, but even I do not know how to classify each child. Bradley's pachygyria covers a good portion of the right side of his brain and a very small portion on the left side of his brain. He's developmentally delayed and has a very difficult time with reading and math, and he's at the age of a third grader. His math and reading skills have been on a kindergarten level for the last year and a half, but are slowly improving. Hey, at least he can write his first and last name now, and can verbally identify most letters of the alphabet.
He did not take steps until he was 22 months old and didn't even learn to crawl until his third birthday.
Keep your chin up, friend! Be strong!
Your new baby might be a big help. Bradley has a little sister named Kacey, and I potty-trained them both at the same time. She was two and he was almost five. I'm sure your daughter is probably not ready because she has been focusing on feating other daily tasks for so long, and is slowly trying to catch up. She was behind on walking and crawling, so I'd definitely give her plenty of time to learn and catch up. Things will all work out. I will pray for patience and strength for you and your family, and for God to help her communicate better to you, her pottying needs.