I explained my condition to people this way. In layman terms: I have a very rare skin cancer. Its of the pheramone sweat glands. There are only a few hundred cases reported in the literature in the whole world. At this time the cause is undetermined. This tissue is found on the breast, vulva, anal, perianal, scrotum, penis, ears and eye lids. This cancer has a high rate of returning outside, but near the treated area. Hence, its very important that all efforts be made to clear the edges of any remaining cancer cells. I was told by my local docs and my M.D. Anderson doc, "Its VERY important to determine, before treatment, that this is not a second site of a primary cancer in the vagina, bladder, rectum, intestine etc." As then a different surgery may be performed to include all cancer sites, not just the surface skin. After the inital treatment, the pt. should return at regular intervals to check for any return of this disease. So this condition is a ongoing cronic condition that has to be watched. Yes it is confusing, frightening and uncertain. That is why this little group of folks that have been thru it already is important. We can understand what you are going thru. Be compassionate about your concerns and fears. You are young, you have a condition that no one you know has ever heard of. You do not know what your experiences will be and what the treatments will be like. We have formed a little group that might be able to be there for you during and after your treatments. So write to us any time you feel the need, or call any of us that posts our phone #s. ??When is your surgery planned? Is the plan for you to stay in the Hospital? Do you have someone to help you with wound care when you get home? Do you have an idea as to how long it will take to heal? So the docs plan on using Aldera cream after you heal? Hope to hear from you soon and good luck to you. Call anytime. EMPD