I would first like to THANK, Arturo, who once again has helped our community immeasurably.  We can't thank him enough for all of his efforts.  

We now have a opportunity to help fund SCLS research.  I just made a contribution.  In addition, I sent an email to friends and family to help support this inititiative.  Furthermore, we probably have no idea of "Who Knows Who".  Once we start these emails it may lead to a very unsuspeting and helpful individual(s).  I strongly recommend that you take time to send an email to your friends and family. This may be the start of something very exciting for all of us who have SCLS.  If you want to use the email I created (most of it was copying Arturo's write-up) let me know and I can email it to you under separate cover.  Please include your email.

 Robert Nuara