I apologise for offending you. Our friend was in a similar situation as you (I qualify this by saying I will never know that it is the same as yours) - but it was also debilitating and horrific. My wife and I shed many tears seeing someone unable to cope with what are everyday activities for most of us.
We had no medical answers and HKPP seemed to fit so well. We read many articles and searched the net which is how we got onto RareShare.
The turning point was when we realised some of the issues our friend face were psychological and we were tough on her.
The next key point was a good friend of ours (and like me, was a sceptic of psychologists) said to our friend "thruth is truth, no matter who says it", and he encouraged our friend to go and see the psychologist with an open mind, listening to everything he had to say, then consider it for herself.
The final key to our friends recovery was her willingness to have a change of heart. For the previous two years she always said she was willing but would now say to you that she wasn't. She wasn't willing to look at the psychological. But when she had a change of heart she improved tremendously.
This is written so simplistically but it wasn't easy for anyone nor a quick fix. Our friend still has lapses into the old ways but no longer is she seizing, not one bit. She still had skin discolorations and the odd twitching of the neck muscles.
I realised my first writing may offend some (and perhaps all who have found themselves in this position), but I have hope that it may help some too.
I look forward to your response.