I have been on monthly infusions of Gammagard for several years.  Now, my infusion center is changing to Octagam. Is anyone currently on Ocatagam? If so, is there any concerns that I may not be aware of?

Hi rnuara,

I have changed products frequently without encountering any problems.

Best regards. Claude Pfefferlé

Hi,

 

I  also have changed the products frequently (including Octagam, Intratect, Privigen and several others) without any problems.

I think I get the brand that the hospital can easily obtain and/or is the chespest at the moment. They seem to think that they have made better experiences with a certain one (I forgot which one) and their other patients (not SCLS patients). I personally can't confirm that.

 

yours

Andreas

Thank You for the comments about Octagam.  It is greatly appreciated.

After being on Gamunex for three years since I started getting infusions, the hospital infusion center switched to Privigen. I'm not sure if it was a cost thing, or the fact that the Gumunex had a recall which resulted in a shortage.

 

That being said, I've had a new doctor, and my dosage rate has been increased significantly. I plan to write a more detailed message on that in the future. (spoiler: nothing negative)

BUT also, and I'll follow up soon with this, I was just hospitalized after a covid infection with a possible minor SCLS attack. Home as of yesterday, but I also want to detail that once more information has come back. There's a chance it was an interaction with Paxlovid, but I am preparing a more detailed write up once I gather all the details and feel a little better.