I just found out that Dr. Clarkson died recently at the age of 99, see https://www.aacr.org/professionals/membership/in-memoriam/bayard-d-clarkson/

I'll never forget when I went to meet him in person in April 2011 and told him that what we now know as SCLS is also informally known as Clarkson's Disease.

He was completely astonished!  He had no idea, because after he encountered the SCLS patient he treated in the late 1950s, and he published about this puzzling (and fatal) experience in 1960, he never saw another SCLS patient again -- until he met me, that is -- and he dedicated his life to cancer research at New York's Memorial Sloan Kettering Cancer Center, pioneering the development of targeted therapies aimed at cancer stem cells.

I added this fact to his biography on Wikipedia, see https://en.wikipedia.org/wiki/Bayard_D._Clarkson

Many thanks to Arturo for this communication. The story of Dr. Clarkson is extraordinary, and his contribution to the description of SCLS is invaluable for all the patients who have benefited from this original publication. Arturo has the great honor of having met a physician who, in 1959, was able to recognize the symptoms of a new disease that was not yet well understood and had no treatment at the time. Medicine is continually advancing thanks to the insight of tireless researchers. Thank you to Dr. Clarkson for his contribution to raising awareness of SCLS, and to Arturo, who deserves credit for managing this website, which has helped save lives by sharing a wealth of scientific information.
Claude Pfefferlé

Yes, indeed. A hearty thanks to subsquent researchers who picked up and carried the torch, especially Dr. Drury and the many European and Commonwealth scientists.

Susan Harrington Tedrick, JD