Hello! Looking for anyone who has SLCS and then became pregnant. Were you diagnosed before you became pregnant or exhibiting symptoms but not yet diagnosed? Did your SLCS affect your pregnancy and vice versa? Did you need an increase in your IVIG dose? 
Thanks 

Sophie 

sophi3hill@gmail.com

Hi Sophie, I was actually pregnant with my daughter when I first started to show signs of SCLS. I contracted Parvovirus from my 2 year old son, who turned out to be a chronic carrier at the time and I became very ill. This is what seemed to be my trigger for developing this disease. I have the chronic form of SCLS. I would have less severe attacks, but suffered from them multiple times per month. At the time, no one new what was going on with me, so I was not receiving IVIG at the time. I was considered a high risk pregnancy and they watched me very closely, but luckily, I had no major issues with my pregnancy at all. The further I got into my pregnancy, my attacks became less severe. I had my first major attack after she was born. She is now 22 years old and has never had any issues. She's perfect. I hope everything goes well for you.

Maria