I had read somewhere Dr. Druey was going to write a new protocol  ti include IVIG before he retired. Can anyone lead me to where this is?

Thank you.

Gailkrall, see the page https://rareshare.org/topics/2260  In the article titled "Primer: Systemic capillary leak syndrome," the pages 9-11 are especially worth handing out to the first nurse that you meet whenever you arrive at a hospital's Emergency Room, together with the other article noted there and also in https://rareshare.org/topics/2192

I asked Dr. Druey to send me an updated, one-page flow chart of the emergency treatment protocol that includes IViG, but I can't upload it to this forum. I like the flow chart because it's easy to carry in my wallet. Email me at catsanmice@gmail.com and I'll send it to you. 
 

Dr. Druey's protocol for the management of suspected episodes of SCLS can be found on page 10 of his last article, Druey, K.M., Arnaud, L. & Parikh, S.M. "Primer: Systemic capillary leak syndrome". Nat Rev Dis Primers 10, 86 (2024).  See https://www.nature.com/articles/s41572-024-00571-5

Various steps can be skipped when duly diagnosed SCLS patients are experiencing an episode, see Pecker MS, Hammudi M, Melchio R, et al."Management of acute episodes ofclarkson disease (monoclonalgammopathy-associated systemiccapillary leak syndrome) with intravenous immunoglobulins". AIM Clinical Cases.2022;1:e220496.  See https//doi:10.7326/aimcc.2022.0496

Write to me at aporzeca@american.edu if you don't have access to these articles.