Dear all,

There is a suspicion that there is an underlying cause for the capillary leak in my case. Tests were run, and many causes were ruled out (sarcoidosis, genetic disorders, auto-immune diseases, etc.)

One of the interesting findings in my recent bloodwork is however that the active Vitamin D level (1.25OH) is very high, whereas the Vitamin 25D-OH is normal. Albumin corrected calcium level was also normal. CK and ALT were also slightly elevated, whereas leukocytes/lymphocytes/neutrophils were below reference values.

I wonder, is there anyone else with experiences concerning elevated active Vitamin 1.25D-OH  levels? And if you have, is there anything worth considering given causes/consequences? 

Any input is very welcome, because this finding is also puzzling my health care providers.

Thank you very much in advance!!!

I have to take large doses of vitamin D daily. For some reason, my body isn't processing it right. I know this is opposite of what you have but it is a vitamin D issue.

Regards, Rita

Dear Rita,

Thank you so much for your reply! That is interesting to say the least... indeed also a vitamin D conversion issue! Has your doctor ever looked into this for you? 

If so, what were his findings?

Best regards!

I just read the thread "Aged Beef Enzymes - a trigger?", posted in this forum. The thread discusses enzymes and histamine levels in the body. I saw these posts and wondered if there's a connection between vitamin D and histamines, and found this: "Vitamin D plays a crucial role in regulating Mast Cells, which release histamines when they are activated. Low Vitamin D levels can lead to increased histamine levels ". The one thing I remember about Dr. Druey's research is he found that SCLS patients had something different in their histamine response. I wonder if that may tie in with Vitamin D? Low levels of D could be part of why the body has an SCLS attack, and high levels of D may point to the body trying to regulate histamine levels.....Just an uneducated, unscientific theory :)
Take a look at the thread "Aged Beef Enzymes", above. 
Cathy