Dear all,

There is a suspicion that there is an underlying cause for the capillary leak in my case. Tests were run, and many causes were ruled out (sarcoidosis, genetic disorders, auto-immune diseases, etc.)

One of the interesting findings in my recent bloodwork is however that the active Vitamin D level (1.25OH) is very high, whereas the Vitamin 25D-OH is normal. Albumin corrected calcium level was also normal. CK and ALT were also slightly elevated, whereas leukocytes/lymphocytes/neutrophils were below reference values.

I wonder, is there anyone else with experiences concerning elevated active Vitamin 1.25D-OH  levels? And if you have, is there anything worth considering given causes/consequences? 

Any input is very welcome, because this finding is also puzzling my health care providers.

Thank you very much in advance!!!

I have to take large doses of vitamin D daily. For some reason, my body isn't processing it right. I know this is opposite of what you have but it is a vitamin D issue.

Regards, Rita

Dear Rita,

Thank you so much for your reply! That is interesting to say the least... indeed also a vitamin D conversion issue! Has your doctor ever looked into this for you? 

If so, what were his findings?

Best regards!