Hi 

Just found out my baby (19 weeks in utero) has 4q 33 terminal deletion.  We are doing everything we can to find out more information on this.  It's really hard to find information on these types of cases and I really would like to learn more.

Are there any insights or information on this that anyone would be willing to share with me?  We are being encouraged by Drs to consider termination but there just isn't enough information out there to help us make this difficult decision.  I want more than anything to keep my baby and fro him to be happy and healthy!