I have had 4 hospitalizations since October 2021. My 4th  wad end of June 2022 and was out of state in Washington. They diagnosed me with SCLS. I have been struggling to find a doctor here in Texas that is knowledgeable. The hematologist I visited yesterday was a complete bust. 
Within  5 minutes I could tell she was not invested or willing to help me with condition.

Does anyone on this forum familiar with a  SLCS doctor in Texas and even greater If you know of anyone in Houston area?

Thank you.

Gail,

Welcome to this SCLS virtual community on RareShare!

There are a lot of useful resources here, including hundreds of prior Discussion topics, so be sure to explore them for potential answers to your future questions.

A perfect example is a recent prior Discussion found on the page https://rareshare.org/topics/2169, where you will find that one of our members asked how to find a supportive physician in the Houston area, and I provided advice which may fit you like a glove!

Arturo