Hello,

Due to a severe selective IgA deficiency and other presumptive diagnosis, immunoglobulin infusions cannot be applied in my case. Since my health condition gets worse and worse and I still have no diagnosis (SCLS is only a presumptive diagnosis), I was recommended to undergo autologous stemcell infusions.  Does anybody know about risks or complications when diagnosed SCLS? This is really my last chance, but I am very warried about this treatment, no Doktor can answer this question... thank you very much

Feli,
My advice is that you have your main physician, or else whoever is recommending that you undergo these stemcell infusions, contact either the world’s leading authority on SCLS, Dr. Kirk Druey from the U.S. National Institutes of Health, see https://irp.nih.gov/pi/kirk-druey, tel. 1301-435-8875, email kdruey@nih.gov or else Europe's leading authority on SCLS, Dr. Zahir Amoura from the Hôpital de la Pitié-Salpêtrière in Paris, https://www.aphp.fr/offre-de-soin/medecin/505439/066/04, tél. 0033 1 4217 8001, email zahir.amoura@aphp.fr for a consultation on the matter.

Arturo