I finally got a diagnosis today.  Is this community still active? Hoping to connect with others that are mananging this condition. 

Well I have been recently diagnosed as well.  I have tried steoids for 8 weeks but they only recovered my vision.  There is still inflamation so I have to go on Immunosurpressants.   Happy to chat more about it. 

Jenna, I would love to hear how your treatment is going.  I am on trying to help my best friend who is just frozen with fear.  She just started steroid injections which have proven to be very painful for her.  Her vision is failing fast in her right eye and the doctor says that the other eye is not far behind.  We are desperately looking for treatment options.  We live in Seattle.