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Insomnia

rnuara Message
24 Mar 2022, 08:17 PM

Just wondering if anyone else suffers from insomnia after receiving their IVIG infusions?  I have trouble sleeping each night that they administer the treatment.  Not sure if it just me or not??? They lowered my steroids during the infusion, but that didn't seem to work. If you have trouble sleeping have you found anything to help remedy it/

aporzeca Message
25 Mar 2022, 03:21 PM

Robert, first, and as you know, I’m not a physician, and thus the following does not constitute medical advice. Second, FYI, I’ve never had trouble sleeping before, during, or after my IVIG infusions -- but then, I've never taken steroids in conjunction with my infusions.

If I were you, I would discuss the following options with your physician. The first is to reduce or possibly eliminate your intake of steroids, because one of their best-known side effects is that they cause nervousness, anxiety, and insomnia, see, e.g., https://www.hss.edu/conditions_steroid-side-effects-how-to-reduce-corticosteroid-side-effects.asp#:~:text=Insomnia,daily%20dose%20in%20the%20morning and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7357890/

Therefore, what you are experiencing is unlikely to be a coincidence. Maybe there was a good reason, long ago, for you to take steroids in conjunction with your infusions, but our bodies change over time, so it’s possible that your body doesn’t need those steroids anymore, or not as high a dose of them. Indeed, your having insomnia now may be a signal your body is sending you that it doesn’t want those steroids in your system!

The second option is for you to take a sleeping pill, or something else that will relax you and let you sleep, on those nights after your infusions. Your physician might prescribe you a sleeping medication or tell you to take some Benadryl. He/she probably won’t advise you to take a shot of your favorite alcoholic drink, but that's what some of us do when we have an occasional problem falling asleep!

Good luck!

rnuara Message
26 Mar 2022, 03:41 PM

As usual, thanks Arturo for your advice.  I especially like your last recommendation.