Hello Judit. Before the first IVIG treatment, I made 6 episodes of serious capillary leaks, threatening the vital prognosis, the first of which was on May 2003. On April 2005 I began a monthly preventive treatment with IVIG ( 2 G/ kg) . Since this date, I did not make any more relapse until October 2008, where a new SCLS could be stopped quickly by IVIG. In my case, it seems that the treatment by IVIG is effective not only in disease prevention but also in case of an acute leak. The treatment is very expensive and for this reason it is not easily accepted by the insurances. In case of a serious shoc, requiring a reanimation in an intensive care unit, it would be worth to suggest to the intensive medicine specialists to use the IVIG.
Best greetings Claude