I am sad to inform members that our community expert and my dear friend Arturo is hospitalized at this time in intensive care for an acute severe attack of SCLS. His wife allowed me to inform members in case someone was trying to reach him for questions. Thanks. Dr. Rahman

I am praying for Arturo and Nina. Please keep us informed.

Prayers heading your way Ruth

Our prayers are with Arturo and his family. Robert

Arturo's condition has improved though still in the intensive care. Making steady progress.

Arturo Our prayers are with you. Never give up. Please let us know how you are. Walt

Dear Arturo, I am very sorry to hear that you're in the hospital. My thoughts and prayers are with you. Are you in the Georgetown Hospital? I'd like to come visit after you get out of intensive care. Keep your spirits up, we're all praying for your recovery. Allen

Thinking of you and your family

I think only those of us who suffer from this truly know how one of these attacks hit you physically and mentally. We wish you the best.

I wish you good luck, dear Arturo. I am sure that you are looked after by the best specialists and that your knowledge of the SCLS will help your doctors to draw you from this relapse.

Arturo continues to improve. He is still in the ICU at Georgetown University though. This attack was similar to his very 1st episode in 2005. His wife thanks everyone for their prayers and wishes. Thank you.

Attacks can present differently one attack to the next and can be misleading and dangerous. I have often thought that I was having stomach virus and it turned out to be a leak. The literature reports that people with SCLS who go to the hospital too late do not do well. It is important for all of us to identify early signs of the starts of our leaks-runny nose, feeling "funny", sweating, swelling, nausea, stomach cramps, thirst, lower back pain, decreased urine output are most of my early indicators.

Those early signs are all very good indicators...sometimes I just feel "funny" so I usually go home and rest. Fortunately I have only had one other very minor episode since 2003 but I do have many of the above symptoms above when I'm sick or stressed out. I am glad to hear that Arturo is doing better in the ICU. I and my family and friends all have included Arturo in our thoughts and prayers. Thanks for the continued updates on his condition. My best to him and his wife and daughters.

Our thoughts and prayers our with you Arturo.. You have done an amazing job on letting people know about SCLS and bringing us together on this site. Thankyour for all your hard work. I know your family needs you and so do your friends at rareshare!! Get well soon!!

caro Arturo ti faccio tanti auguri di pronta guarigione anch’io dal 14 marzo al 21 marzo sono stato ricoverato in ospedale per una crisi SCLS

This is Arturo's daughter, writing to give you a happy update about my father's condition. Thank you everyone for your thoughts and prayers; we are very grateful for your support throughout the past two weeks. We are glad to report that Arturo is out of danger and doing much better, though for the time-being he will continue his recuperation in the hospital. Hopefully, my dad will be back in communication with all of you very soon, as you all mean so much to him! Best, Katia

Katia, Arturo and family, so glad to hear Arturo is doing better - our prayers have been answered!! i know recovery is tough and sometimes long so we will be thinking about you during this time as well. thank you so much for keeping us up to date. Arturo, keep your spirits up and we look forward to your return on rareshare!! linda (allen's sister)

Hi, Any news on Arturo's condition? We are all hoping and praying for his speedy recovery. All the best, Allen

Thank you very much, dear SCLS Community members, for your good wishes and prayers. I came home last week after 3 weeks of hospitalization, having barely survived a 3rd life- and limb-threatening episode of SCLS -- one which, all kinds of medications notwithstanding, was as deadly serious as my first (Nov. 2005) and second (April 2007) episodes. Fortunately, besides surviving, it seems that I have no permanent, additional damage to function in arms or legs, thanks to prompt and extensive fasciotomies from top to bottom. Moreover, all my vital organs are still OK, even though my lungs and kidneys suffered for a while. I'm now regaining my strength and am able to walk again slowly (having "graduated" from the wheelchair with which I came home and then the walker), and my hands and fingers are also starting to move more freely. (I'm typing this with just 2 fingers, because the others are still rather stiff.) In a couple of weeks, I will be opening a new Discussion Forum topic entitled "The Lessons I Have Learned." Stay tuned! Arturo

Dear Arturo, I am very happy to hear your news and that you are on the road to recovery. I will be interested in reading and participating in the lessions learned forum. I think having the fasciotomies promptly is critical and I am glad you have not suffered any additional damage. I am glad you are walking again since that is how I last remember you! Best wishes, Allen

artuto, so happy to hear you are getting better and able to share with us the news of your recovery in person. it is good to hear from you. keep staying positive and hang in there as i know recovery is tough after these kind of episodes. we are cheering for you!!! take care linda

Dear Arturo, I am so pleased to have logged in to find that you have made it home. Wishing you all the best for your recovery. I have been just so blessed to have found this sight and having people like you with the courage to share with us all your experiences. I look forward to reading an up date ' The lessons I have learned'. I am heading off to an appointment with my hematologist this Thursday armed with this site and your article and I thank you for this. Take good care of your self Ruth