Rubeanie, I too went many years between episodes, the longest being 10 years. I thought I was over having SCLS attacks but that wasn't the case. My last attack that was nearly fatal, was in 2013. Since then I have been on IVIG 2gm/kg every 4 weeks, fortunately without any attacks. If you are not currently on IVIG, I strongly recommend that you discuss this with your doctor and go on IVIG immediately. It is a life saver.