Greetings beloved Dent community!

The time is NOW! So many advances in science and so many people in need!

Please respond with your intentions to join in on the conversation about how we can find a cure and BEAT Dent disease! Together we're better!!!

All my love! Jill (The Dent Disease Foundation, The Dented Kidney)

Hi Jill!!! I am excited to get to know all of you!!!!

Jen

Hello! I use a translator, so my message may not be correct.

I am the mother of a 7-year-old boy with type 1 dent disease. Which of the forum participants has type 1? How old are you? What are you being treated with and what are the results? My son was prescribed: Enalaprilum to fight protein in the urine, as well as Blemaren to fight calcium deposits in the kidneys.

At the moment, he has stage 1 chronic kidney disease, protein in the urine up to 1 gram and calcium deposits in the kidney pyramids. 

I wonder at what age the deterioration occurs. I want to know what to prepare for.