For folks, that happen to find this group, please know there is a new nonprofit that is raising awareness and fundraising for GA research. You can find the group here https://www.gyrateatrophy.org/. Please join, share your story and help spread the word. 

Also, there is a GA Facebook group, https://www.facebook.com/groups/312246252579381 but most of the discussion is in a chat which you need to be invited to. You can post in the group page and we can add you to the chat, which includes patients, parents and families members across the world. 

All the best, 

Sean