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Peer support groups help mum of child with a rare liver disease find answers and support

shannon.ashoori Message
24 Aug 2020, 04:52 AM

Read Eleanor’s story here. Eleanor’s mother knew something was wrong when she developed severe itchy skin. Thereafter, she was diagnosed with PFIC. Eleanor and her mother have utilized online support groups for information, resources, and connections. Do you belong to a local support group? What kinds of resources has your group provided?