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shannon.ashoori Message
1 Jul 2020, 01:02 AM

Check out this article about Karabeth Souza, an eighth grader living with X-Linked Hypophosphatemia . Souza’s parents noticed something was wrong when she was having trouble walking at 18 months. Shortly thereafter, she was diagnosed with X-Linked Hypophosphatemia. When were you first diagnosed with XLH? How did you cope with the news?