what were your experiences with Aldera if you used it. I start mine next week.

Hi bither, I started the Aldera right after my surgery skin was covered with new skin. (it took 4 months) Still quit fragile tho. Used it 3 nights and had a slight tear in the new scar tissue. Thought it would close up in a couple of days and I could continue the 3 days a week routine. Well it did not close up over the week end. So I was afraid to start using it again until I checked with my Dermatologist. We did see, even with only three days of use, a slight reaction. i.e. redness itching etc. My hubby and I decided to hold off using it again until the torn tissue had closed over. It is taking a bit longer than we had thought. The tissue continues to weep and bleed some. The plan right now is to be diligent to keeping it clean before we use the aldera again. Hopefully next week I can start using it again. But I have really been annoyed with itching in that area. Especially in two small spots. Its very compelling and I wonder..and hope.. that it has not come back already. Time will tell. I understand the importance of using the cream. Try to activate the body to go kill any Pagets stray cells. So I will keep trying to use it. It has taken a village of docs to pull all their knowledge to help me pull thru each step of this process. And their are not many who have ever seen Pagets let alone treating it. Thats why we need to keep sharing, so we can discover the best way to go about caring for pts. with Pagets. I feel our input is important to the docs. Communication is the only way to come up with the best plan. Yes I feel like my recovery from MOHS would have gone much better if I had been in the hospital. My pain and wound care could have been monitored by the nursing staff, not my husband. I felt it was inhumane and barbaric. I would never allow anyone I know and love to go thru anything like I went thru. I would never put up with it again. I would rather die first! There I said it! So a support group, sharing with our doctors, is the only way to help those who come to this site for advice on their treatment. I'm sorry if the above upsets some of the readers, but I feel strongly about this!

thanks Bither for your call. I have not called you back yet, as I have been hoping to hear from Peachton and her progress from her surgery. I re-read my last post to see what I sounded like. Yes, I see that towards the end, I sounded pretty disguested. I have not gone thru hardly anything compared to your long treatment period. You are so sweet to send your encouragement to me. thanks! :^) I have been feeling pretty good in general. But when I started the Aldara, after a few days, I had a big bruise/bleed in my groin. I am on blood thinners because I had a Pulmonary Embolism a few years ago. I have to keep my blood thinner than most folks. I did not know what caused it and/or should I call a doctor, and which one. I did not know if it was important or not. Not really wanting to call or see any medical people for a while. Just wanted to lead a normal life for a few weeks. (I guess it was a feeling of anxiety and uncertainty.) I could not tell if the bruise was due to the Aldara or something I had done somthing to cause it. I will always be concerned for our group when they are going thru active treatment. I am happy that we have found each other. I hope to reach Peachton tomorrow and then try to reach you on thurs. Is evening or days best for you. Thanks for your concern. I appreciate it. Let me know how you are doing and call me anytime to share. Your EMPD Buddy.

Hi, yes I do want to talk to you. I talked to Peachton today. Found out how her surgery went and how she is doing. Gosh this stuff is sooo painful. It hurts to just think about it. I will call you tomorrow even unless thurs is your day to Fence. :^) How neat, I bet its fun. I used to love to watch it in movies and at the Olympics. what time zone are you? We are Pacific. I will start a new topic. It will be a survey of questions to try to collect info on all of our experiences. Treatment type, years had condition. It coming back and what ever we can think that might be pertinent to collect for our docs. :^)