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Any adverse reactions to anesthetic

WazzaACT Message
14 Jun 2020, 11:03 AM

Hi All. After 9 successful years of IVIG being taken via canula I have asked my specialist for a "port" or Port-A-cath. This requires an anesthetic and she would like to know any recent experiences from our community with the use of anesthetics. I would welcome anybodies feedback on this issue. Thanks

claude53 Message
15 Jun 2020, 06:13 AM

Hi WazzaACT,

To my knowledge there is no contraindication to use local or general anesthetics in connection with SCLS. I had several general anesthesias for orthopedic problems and local anesthesias for skin wounds without any problems.

Claude Pfefferlé

AndreasGunsser Message
15 Jun 2020, 02:53 PM

Hi WazzaAct,

I had many general anesthesias for orthopedic problems (compartment Syndrom/fasciotomy including wound healing problems and surgeries at my feet) and several local anesthesias, including the surgery in which I got a port 9 months ago. No problems at all with the anesthesia.

 Before the first "planned" surgery I asked my doctors. They said, that SCLS should not be a problem. Of course, they cannot give a 100% guarantee, because no one knows much about SCLS.



aporzeca Message
16 Jun 2020, 08:23 AM


I cannot recall any published or RareShare-community reports of any SCLS-related problems with anesthesia, partial or even general. And like Andreas, I've had plenty of surgical interventions -- more than 25, in fact -- mostly with general anesthesia, and there was never a problem, never mind an SCLS-related problem.


WazzaACT Message
16 Jun 2020, 08:33 AM

Thanks so much everyone. Very much appreciated.


krogers Message
18 Jun 2020, 12:02 PM

I had a few general anesthetics when my legds needed stitching up  after  Fasciotomies without problems. 

Jcarson Message
23 Jun 2020, 10:09 PM

Hello Wazza,   I hope all is well.  I have had a couple of light aneasthetics for coronary angiograms etc.  really only midazolam, but had to be prepared for GA if things went pear shaped.  Absolutely no trouble.   I hope corona is leaving you and all of the rareshare group alone?    John

WazzaACT Message
27 Jun 2020, 04:54 AM

Hi John. I am fine but of course a little on edge given this coronovirus outbreak. We can count ourselves fortunate in Australia that we have so little community transmission and an excellent medical infrastructure for all. How about you? Warren