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Hello from a New French patient

Marie de Normandie Message
31 May 2020, 07:59 PM


Delighted that such a community exists given the rarity of the syndrome which some of us here have. Congratulations and huge thanks to its founder! Your commitment is admirable and your information so precious! I just wanted to say this for today: we are not alone! I'm coming back soon to share my own journey with Clarkson. In the meantime take good care of yourself. Solidarity!

Arielbatt Message
17 Jun 2020, 06:13 PM

Hello, every patient who finds the rareshare site is lucky for the entire community.  Once again I share my thanks to Arturo, and I share his words.  I hope you tell us soon your experiences.

 Ariel since Argentina.