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Coping with the Coronavirus pandemic

shannon.ashoori Message
8 May 2020, 09:20 PM

How are rare disease communities coping with the coronavirus threat? Feel free to reflect on challenges you are facing, small victories, or anything else you feel comfortable sharing. My heart goes out to all of you and hope you are all safe! 

Best regards, Shannon 

warthawg Message
29 Aug 2020, 12:33 AM

Hi, I've been isolating all that I can, but I do have to get out and around occasionally. My spouse and I both take a lot more precautions than most people in our area, but I'm actually kinda resigned to the fact that we may become exposed. So far so good but I'm really concerned should I get Covid19 because I have a fair amount of pulmonary fibrosis already. 

mabelsmom Message
5 Sep 2020, 04:06 AM

we are doing the best we can. we keep track of the news, wear masks when we have to go out, use hand sanitizer whenever we are out and limit interactions with others.  In Canada there is an APP that tells you if you have been exposed but that is like telling someone the gate is open after the horse has escaped ;(

I try to do most of our errands as my husband has ASS, but I worry a lot, I just try to be so careful - what else can one do?


Be SAFE EVERYONE. - Hopefully this will all be over before 2022