Hello all... In light of Coved-19 and my on-going side effects from treatment, my specialist and I have been discussing the subcu-IVIG option for me. I am wondering if anyone has any experience with it or any insight to share with me as we look into this an option going forward. I hope everyone is staying healthy and safe during this time.
Thanks,
Lisa from Canada
My daughter gets SubQ igg . Hizentra is the brand and she tolerates it much better than the larger infusions . We do the infusions at home 3times a week and it takes around an hour each time . I do it myself and it's very easy to do . Supplies are mailed right to us . She still has side effects but they're mild compared to the large infusions . She has been on Hizentra since around January 2013 I believe and has only had very small leaks a couple times that we just monitored at home .
Hope this helps .
Kristy
For more answers, check out https://rareshare.org/topics/1939 and https://rareshare.org/topics/1462