Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Can Corona trigger a new episode?

HansDeWit Message
9 Mar 2020, 05:41 PM

Corona  - Covid 19 is reaching all parts of the  world so my question is ; can the virus trigger a new episode when a SCLS patient is infected? So do SCLS patients have to be more vigilant like elder people or do we have more protection from our IVIG sessions?

claude53 Message
10 Mar 2020, 08:34 AM

Like other viral infections, COVID-19 can, in theory, be considered to be a trigger for an acute leak. It seems to me prudent to adopt a behavior aiming to avoid a contagion. In the event of a suspected infection, you must remain alert to the possible precursory symptoms of a leak : asthenia, hypotension, vomiting, diarrhea, or other symptoms already experienced during a previous leak. Personally, I will refrain from traveling away from home or away from usual medical personnel for the next few weeks (months). If I had a viral infection, I would tell my doctor, but I would not go to the referral hospital for no other reason.

Claude Pfefferlé

aporzeca Message
10 Mar 2020, 10:53 AM

As Claude wrote, it would appear that all viral infections have the potential to trigger the chain of biochemical events that ends up causing an episode of capillary leak.  Having recently experienced a leak episode while fighting a case of Influenza A infection, see https://rareshare.org/topics/1967, and given the recent spread of the Corona-virus in the United States, my wife and I decided to isolate ourselves at home and give up on seeing friends and our children and grandchildren for a few weeks -- because we don't want to catch anything that they might catch.  Fortunately, I can work from home and "telecommute," and we can Skype or FaceTime or call friends and family.  Isolation is a socially and emotional painful thing to do, because we normally spend time with our grandchildren two or three times a week, and otherwise lead a social life, but we have been urged by our (grown) children to take the threat of potentially deadly contagion very seriously. They would rather not see us for a few weeks but know that we are safe, than risk not seeing us anymore. 

markc Message
10 Mar 2020, 11:38 AM

I started working from home last week. My wife has back surgery this week, and the doctors told me that I shouldn't come to the hospital with her. This is a difficult idea to accept, but she is insisting that I stay home.

elganzory Message
10 Mar 2020, 05:09 PM

Hi 

I hope that staying well 

as you know I leave in Italy since the virus start I was always at my home I just went to work at the evening to serve the deniers I work like a chef but with the new order we closed the ristorante I am still at home the was the recommendation of the president we hope that this epidemy stop this ovulation. God bless us