I also have considerable Autonomic dysfunction. I have low core temperature approx 35.5c, I do not cope with rising or falling temperatures, I do not tolerate being in the sun, I get heat rash very easily, and feel weak, my body can't regulate my fluid levels, hence a mild but chronic capillary leak. My blood pressure is unstable between lying, sitting and standing. Someimes there is a major rise or fall of either systolic or dyastolic or heart rate, sometimes by 50 points within a minute. This can make me weak and faint, create brain fog etc. I regually vomit before completing a meal, for no reason other than the autonomic system inappropiatly thinks there is some danger, and I have gastroporisis and severe constipation / impaction for months at a time every year or so. The autonimic system stops telling the stomach and bowel to contract.
I have a Gastroentologist, who thinks that this autonomic dystfunction goes hand in hand with Mast Cell dysregulation and connective tissue Issues, both of which I seam to have. Going forward in the next few months are appointments with Cardiologist, Immunologist, and Rhematologist, and probable treatments for BP issues ( Mestinion) and stablising Mast cells with Sodium Cromoglycate, and inhibiting the relase of Proteases, Leukotrienes, and Cytokines, which will hopefully reduce vascular permability. I have started on Singulair (Leukotriene antagonist), which has helped fluid isses somewhat and GI issues hugely.
It is interesting that other members have these autonomic issues. Are there any members with Mast cell or connective tissue issues or perhaps maybe all 3?