Thank you very much for the update and I truly hope you finally tolerate infusions side effects ASAP.
Currently, I find myself in a very challenging situation since my doctors do not want to institute IVIG anymore upon stopping the infusions due to the intense common side effects I experienced on my 3rd initial infusion, (A daily 0.5g/kg infusion in 5 days was programmed. I weigh 50kg without edema), which I believe are a mere consequence of receiving a lower dose and a higher speed than the documented by Dr. Druey.
So far, I am doing my best from the hospital to get my doctors contact both Dr. Druey and Prof. Amoura. It is a quite frustrating situation.
I continuously experience an important lack of breath, dizziness, peripheral edema and extreme fatigue. The same reoccurs every three to four days when I suffer a mild episode along with drastic albumin level decrease, hypotension, +3 to 5 kg edema and high hematocrit - Arturo: I do not experience an hematocrit and Hgb increase in every episode, but in some. I use to be at 38%Hct/ 13-15Hgb and I can go from 41 to 51%Hct and 15-18Hgb in different episodes.
Moreover, I find it interesting that most “chronic leakers” we do not always experience an Hct and Hgb increase.
Irrespective to the above mentioned, I would like to share the following case report (August 29th, 2018) in which Dr. Druey states the SCLS chronic presentation existence based on experience: