Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Good news

alapenna Message
12 Apr 2019, 03:53 PM

My daughter Adele was diagnosed in 2009 and no acute episodes occurred since then. From my profile update:

----- April, 12nd 2019 update -------

Under medical prescription, the therapy for my daughter has been gradually reduced until January 2019, when it has been stopped at all. Since January, as in previous 10 years, no acute episodes occurred, in spite of normal flu that didn't triggered any SCLS symptoms. Great news for us and I think an inspiration for everyone. 

Thank you all for you continuous support and information.

Alessandro & Adele

Nhan Nguyen Message
23 May 2019, 05:19 AM

Thanks for your update! Please check my email. Best luck to everyone!

Arielbatt Message
23 May 2019, 01:30 PM

Thanks for the update, the exchange in this community is very important.

aporzeca Message
24 May 2019, 04:32 PM

Thank you for the encouraging update on Adele!  You are all very brave for experimenting to see if children can "outgrow" SCLS.