Thank you Arturo for setting up this resource and blazing the trail for us so many years ago!
After reading so many experiences here, we are thankful that my husband's most recent and worst episode did not require fasciotomies and we hope has not done much permanent damage to his organs and muscles.
His full story to date is in his profile.
He does tire more easily now. He's also experiencing muscle pain which he did before due to fibromyalgia.
Thanks to Dr. Druey's input our local immunologist has requested our insurance company to authorize ivig treatments.
I wonder if because of all the excellent contributions in this community our insurance will recognize the treatment as the current standard of care, or if they will automatically reject it because of the cost?
I'm ready to appeal and do whatever we can to fight for Dave's life!
Many thanks to you all,