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root canal and other surgeries

mberry Message
8 Dec 2018, 01:22 PM

Hello all. I've been told I need root canal next week and am in the process of maybe starting IVIG (immunologist doing research this weekend and meeting with me beginning of the week). Should I be worried about a flare up following root canal? Should I worry about getting a root canal right now? I'm chronic SCLS so I'm always slightly swollen and can't yet anticipate my flare ups (which happen about every 2-4 months). I've only had one hospitalized flare up, the rest have been not as severe.

Any advice about things that stress your body, like root canals or any other surgery, would be appreciated.

AndreasGunsser Message
9 Dec 2018, 08:04 AM



I had many many surgeries. Around 20 in the 6 months after my first episode. The surgeries were a consequence of my compartment syndrome, and they were quite big (1-3 hrs), with general anesthesia. There were always problems with wound infections.

I did not get Ivig in these days. In fact, the doctors that treated me for a long time in hospital could have known that I have SCLS, but did not react adequately (what caused many troubles on the long run). No SCLS  related problems.


Since 2 1/2 years I get Ivig. Since then I had two other, smaller surgeries: arthrodesis at the toes of my feet, left and right. No problems related to SCLS.


If the surgery is medically indicated, I would do it and take extra care. Of course all your doctors should be informed about the signs of an episode and what to do then.


Good luck!



mberry Message
9 Dec 2018, 01:26 PM

Thank you, Andreas. That is good advice. 

claude53 Message
10 Dec 2018, 08:00 AM


I spent 3 times in the operating room for orthopedic interventions (shoulder reconstruction, knee prosthesis and PLIF), under general anesthesia, without any leakage. I took the precaution to warn the surgeon about my SLCS and scheduled the procedure a few days after the IVIG infusion. Neurolysis of the median nerve is a minor procedure, which is done under locoregional anesthesia. I do not think you run a risk of leak


mberry Message
10 Dec 2018, 12:19 PM

Thank you, Claude. Good to know. Michelle

Arielbatt Message
10 Dec 2018, 11:57 PM

Hi. Subsequent to my last attack, I received several surgeries for infections in wounds produced by the connection of an ECMO that replaced my heart. all surgeries with total anesthesia. No leakage.

WazzaACT Message
11 Dec 2018, 11:50 AM

I have had several operations and all have been fine. I have of course fully briefed the operating team on my condition.

mberry Message
16 Dec 2018, 01:40 PM

Update -- the root canal went smoothly and I'm still feeling fine! Thanks for all your help, everyone. 

claude53 Message
16 Dec 2018, 08:59 PM

Well played !!!   Merry Christmas to everyone !!!



WazzaACT Message
17 Dec 2018, 07:38 AM


ValeriaSpain Message
24 Jun 2019, 07:26 AM


I’m so happy to find that none of you was affected by the surgeries you went through.

I’m having a couple of root canals in about a month from now, a few days after my IVIG infusion. Since I receive my 2g/kg of IVIG split on a fortnightly basis in lieu of 2 consecutive days, I wondered if this kind of surgery occurring in between the first and the second infusion would be of risk.

I will certainly brief my dental surgeon on my condition too.

Have a lovely start of the week!