We are seeking volunteers with SCLS and MGUS to participate in research into Clarkson's Syndrome at Royal Perth Hospital.
The research will investigate the contribution of the MGUS paraprotein (if any) to capillary leak episodes in adults.
Participation would involve giving a blood sample which we would organise via your own doctor.
For the purposes of this research, a blood sample taken prior to commencing IVIG treatment would be most useful.
Please get in touch via rareshare if interested in possibly participating in our study, or for more information.