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Anyone taking Cellcept??

Shannoncourt Message
19 Oct 2018, 06:51 AM


My Dr is thinking.of putting me on Cellcept.  I was wondering if anyone has been on this drug before? Did you stay out of crisis events? Any major side effects?

All help appreciated

Shannon ,diagnosed 2010

L Message
19 Oct 2018, 11:53 AM


I was just curious as to why Cellcept would be considered. I am on IVIG only but would like to know as well if anyone else is on Cellcept.


nwbsaw Message
19 Oct 2018, 04:30 PM


Nolan has been on Cellcept since 2012 because of his kidney transplant. He has had no leaking episodes since he was started on IVIG.

Shannoncourt Message
20 Oct 2018, 09:26 AM

Lisa.... I have not been tolerating the steroids  prior to infusion of ivig and I believe he thinking this might help. ( I see a kidney doctor for my ivig they are big in transplants in their group so that being a common drug to them may or may not be right for me).

Nwbsaw....I have multiple episodes a year.  Thank you for your response.