HELLO!!

My Dr is thinking.of putting me on Cellcept.  I was wondering if anyone has been on this drug before? Did you stay out of crisis events? Any major side effects?

All help appreciated

Shannon ,diagnosed 2010

Hello,

I was just curious as to why Cellcept would be considered. I am on IVIG only but would like to know as well if anyone else is on Cellcept.

Lisa

Hi, 

Nolan has been on Cellcept since 2012 because of his kidney transplant. He has had no leaking episodes since he was started on IVIG.

Lisa.... I have not been tolerating the steroids  prior to infusion of ivig and I believe he thinking this might help. ( I see a kidney doctor for my ivig they are big in transplants in their group so that being a common drug to them may or may not be right for me).

Nwbsaw....I have multiple episodes a year.  Thank you for your response. 

Shannon