After 8 years of silence, let me shate with all of you how my and my sister story continued. 2010 I had Baseldow at a sever level, that generated a tremendous exophthalmos. In two years I had radio therapy, cortisone therapy (day hospital), removed the tyroid, had 5 eyes surgery. In any case better thatn siste that kow spend 4 days/14 days in day hospital for the potassium injection directly in the blod, in other word no possible normal life. But this is not enough!! 10 months ago also to sister has been diagnosed the Baseldow. She started the Radio Therapy, Cortisone but was not possible to remove the tyroid due to the heart (you know the Gitelman effect...) so she had a Iodio treatment... a Nightmare .. the Potossium and Magnesium decreased so much that ... Fortunatelly she is still alive!
So my question is do you know any other case of Gitelman+Baseldow? Let me remeber that we are not twins, 5 years of difference, why have we two different Syndroms?
Do you know if there is any new treatment? the Potassium level of my syster is never and never greather than 2.7 (3.1 is the minimum), this is not life!!