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Living with Pallister-Hall Syndrome (PHS)

ghelon Message
8 Aug 2018, 01:22 PM

What is like living and growing-up with Pallister-Hall Syndrome (PHS) and Gelastic Seizures?

Read my story 'Living with Pallister-Hall Syndrome (PHS) and Gelastic (or laughing) seizures; I'll be brutally honest - a bloody nightmare!'

Just published today (8 August 2018) by the Genetic Support Network of Victoria - GSNV (Murdoch Childrens Research Institute, Royal Children's Hospital); Parkville; Winter 2018; pp.18-19.

Complete edition of the Winter 2018 GSNV newsletter available here