In a recent study, 39 people with AKU were given 2 mg of nitisinone each day for three years. The results show that the drug helps to stop the progression of AKU.  Have you heard of ntisinone?  What other therapies - pharmacological or otherwise - do you use to manage your symptoms?

https://www.sciencedaily.com/releases/2018/08/180801102554.htm