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Scientists hopeful about new alkaptonuria treatment

RareshareTeam Message
8 Aug 2018, 12:03 AM

In a recent study, 39 people with AKU were given 2 mg of nitisinone each day for three years. The results show that the drug helps to stop the progression of AKU.  Have you heard of ntisinone?  What other therapies - pharmacological or otherwise - do you use to manage your symptoms?