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Spinraza for SMA

RareshareTeam Message
29 Jul 2018, 07:52 PM

Check out this story about Faith Fortenberry, a young girl in Texas living with SMA.  Her mother reports that in the thirteen months since Faith started on Spinraza, the first and only FDA-approved treatment for SMA, she has experienced "many firsts."  Has anyone else tried Spinraza?  What was your experience like?