I was interested to find out if any of our community members in the United States, has purchased private health care insurance, so that IVIG infusions are a covered expense?  With all the changes recently with our health care plans, I am not knowledgeable as to how it impacts us.

If so, can you kindly share who is the health care provider and what are the monthly costs they are charging. 

Thank You.
Robert

Only one of the Obamacare Marketplace plans will take you because they must cover treatment for pre-existing medical conditions; I wouldn't expect that anybody else would, since they're going to lose lots of money covering you.

So sad to hear this, best wishes and luck to all.

Hi Robert,

Did you lose health care coverage for any reason that is related to your illness?  If you have become disabled due to this disorder you could apply for SSD. Applying for social security isn’t difficult the process is available online through the website but getting approval from SSD is difficult for some individuals. You are eligible for Medicare if you receive disability which is a decent form of health care. It was just a suggestion because this disorder is complex and can lead to disability. 

Kimberly