Hi Lisa. I live in Australia and was diagnosed with CLS in 2011 after 3 very serious attacks. I have been on IVIG since then and not had another attack.
I was warned off travel, particularl AIR travel. I have carefully reintroduced travel as it is essential for my job and frankly I have had no problems. I have also reintroduced exercise under the close supervision of my Drs.
I am not sure what others have experienced with travel but for me it has allowed me to resume a near to normal life and continue my professional career.
I do suggest you get professional advice because it could be different for each of us but for me it is fine.
Happy for you to contact me directly if you would like further info on how I reintroduced travel, particularl long air travel ( up to 16 hour flights) and the precautions I take.