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Ask the Experts Podcast Series - Antisynthetase Syndrome

icrispe Message
23 Oct 2017, 08:36 PM

Hi Everyone,

I'm a volunteer with RareShare and next week I am recording a podcast where I will interview two experts about Antisynthetase Syndrome - Dr Sonye Danoff of John's Hopkins, and Dr Frederick Miller of NIH Clinical Center. I am gathering questions from the community to ask these experts - please submit your questions via this form by OCTOBER 29, and I can hopefully include them in the podcast (time permitting). Find out more information about the podcasts and the experts on this podcast announcement page.

The podcast will not be availabile to listen to live, but I hope to publish it around November 10.

Thanks so much,


cokeefe Message
24 Oct 2017, 03:35 PM

What is is the cause of Antisynthetase Syndrome?  How does it differ from Polymyositis? Is it possible for Antisynthetase Syndrome to go into remission or be cured?  If so,  what is the recommended treatment? 


Charlotte O'Keefe  

icrispe Message
29 Nov 2017, 12:58 AM

Hi All,

The latest Antisynthetase Syndrome podcast is now published and ready for you to listen!

You can listen on RareShare here:

And on iTunes here:

Thank you to everyone who submitted questions! We did our best to answer as many as possible.



shazy1551 Message
3 Dec 2020, 09:58 PM

Hi, i have recently been diagnosed with ASS. I want to know what is the future life scope, quality of life and survival?