Hi Everyone,

I'm a volunteer with RareShare and next week I am recording a podcast where I will interview two experts about Antisynthetase Syndrome - Dr Sonye Danoff of John's Hopkins, and Dr Frederick Miller of NIH Clinical Center. I am gathering questions from the community to ask these experts - please submit your questions via this form by OCTOBER 29, and I can hopefully include them in the podcast (time permitting). Find out more information about the podcasts and the experts on this podcast announcement page.

The podcast will not be availabile to listen to live, but I hope to publish it around November 10.

Thanks so much,

Imogen

What is is the cause of Antisynthetase Syndrome?  How does it differ from Polymyositis? Is it possible for Antisynthetase Syndrome to go into remission or be cured?  If so,  what is the recommended treatment? 

Thanks,

Charlotte O'Keefe  

Hi All,

The latest Antisynthetase Syndrome podcast is now published and ready for you to listen!

You can listen on RareShare here: https://rareshare.org/podcasts/antisynthetase-syndrome-ask-the-experts-podcast-series-session-ii-11-20-2017

And on iTunes here: https://itunes.apple.com/us/podcast/rare-genomics-rareshare-podcast-series-ask-expert-patient/id1110553816

Thank you to everyone who submitted questions! We did our best to answer as many as possible.

Best,

Imogen

Hi, i have recently been diagnosed with ASS. I want to know what is the future life scope, quality of life and survival?