It is very hard to find information about Mosaic Trisomy 9 and I would appreciate hearing stories from parents or families of children diagnosed with this condition. Trisomy 9 websites have very little information. Case studies are nearly impossible to find. I really would love to hear from someone that knows anything about this.

You are probably way far beyond and have now dealt with this on your own. I have been very lucky to find support and a little more information than I ever thought I could. I hope that things are going well and I would love to get this group going so that when people are faced with this, they have somewhere to get a few answers.