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Husband has sarcodidosis

kcarter29 Message
17 Jun 2017, 09:29 PM

My husband has sarcoidosis.  He has a history of German ancestry.  He ws diagnosed with sarcoids in lungs in 1993 with no symptoms.  After being in New Orleans during Katrina he had a blood clot then SVC syndrome with no history of lines.  3 years ago his H&H went down and he had ascites, and his albumin went to almost nothing. He also had severe cold spells, loss of energy and appetitie, and weight loss.  It resolved on its own 6 months later.  He now has some symptoms again. Sometimes the doctors just want to believe it is not sarcoids but always is.