I just joined the community. It looks like the discussions are several years old. I was just wondering if anyone is still on here. It'd be great to connect.

Hello,

I noticed that the discussions seem out of date too!  I've been looking for sites and did find one - inspire - search "stop sarcoidosis". It s a good source of information about sarc.   I like reading all the posts, but they can be kinda scary. I don't have all the symptons mentioned from different users and I'm not sure what to expect.  I

I was diagonosed this year (after 2 yrs of tests).  I have it in my lungs and in my right eye.  The eye is my main problem now.  It is so full of debres and floaters that I cannot see out of it.  I have been on predinose for 1 1/2 years, but I have to take 40 mg to even help my eye clear up which is too much to take on a long term basis.  Have had 2 surgeries(vitrectomy) on it - It clears up for a month, then back to fogged in.

I need to get off the predisone and am waiting on my doctor to get the insurance to approve the medicine he wants me to start taking, as the predisone causes too much side effects.  I now have predisone induced glaucoma in my right eye, The predisone causes cateracts and makes them worse and you can't do surgery on the cateracts until the inflammation is gone.  ARRGGHGHHH