I have been diagnosed with chronic SCLS too.
I did have an acute attack in October 2016.
No organ damage fortunately.
I have been following treatment since Jan 31st, 2017
With no other episode rather than some symptoms and 2-3 lbs up and down every two weeks.
27mg of Terbutaline, 20mg of Bilastine (antihistaminic) and 200mg of spironolactone are currently keeping me safe.
Docs are positive I'll be in remission 14 months following this treatment. Hopefully they are right.
IvIg has been discussed in the event of another episode. I truly hope I don't get there.