I just got an email saying they were going to be updatng this site and wondered if it was still active. I see there has only been one post and that was in 2010!! There is lots of new info, although nothing to help solve our problems, but we need people to get together to make an awareness of OT!

It's not very active. Believe the most activity is over at https://www.orthostatictremor.org .

There is also a Facebook Group called 'Primary Orthostatic Tremors' that has a lot of the same people in it. There is a lot of daily chatter about OT, I'm a member of both groups.... Thanks for your reply.