I have also discovered SCLS has several ways of presenting itself.
My case is also one of the "frustrated" ways the condition appear to present.
Doctors in Spain and Sweden have confirmed so and luckily, My case is mild and caught on time as they believe of not treating it now, the condition may have developed in a matter of time, maybe some years.
I am currently taking 15mg of Terbutaline a day along with 200mg of spironolactone due to an important suprarrenal hormones imbalance the first and most severe attack caused.
I haven had any other attack since January 31sr when started the treatment.
Doctors are positive I will get in remission.
Feel free to contact me everyone who would like to participate in the book I am currently writing abour SCLS called "Walking with Clarkson". Exposing different case presentations of this condition and a shoutout to doctors be knowledgeable if the importance of an early diagnosis and treatment.
Thank you very much!